About the 2017 Winners

Brian Turley Awards for Patient and Carer Involvement
Collaboration for Leadership and Applied Health Research and Care Programmes in London

Based at St Mary’s Hospital in Paddington, the PREPARE team, is a programme for patients undergoing oesophago-gastric surgery that aims to improve their surgical outcomes by improving their physical and mental well-being prior to and after their surgery. Each patient receives a personalised programme to match their individual needs, abilities and goals.

The programme provides coaching and tailored support in the areas of:

  • Physical fitness
  • Respiratory exercises
  • Eating well
  • Psychological wellbeing
  • Asking about medications
  • Removing bad habits
  • Enhancing recovery
The team involved patients at all stages of their programme to prepare patients undergoing oesophago-gastric surgery

Patients are involved at a strategic level in the development of the PREPARE programme, working with the clinical team to co-design the structure and goals through formal workshops and informal interactions.

An example of meaningful outcomes from patient involvement include the creation of a training clinic 1-2 weeks prior to surgery to teach patients and their carers on home jejunostomy feeds. This replaced post-surgery in-hospital training which patients described as too intimidating and did not involve carers. Patients’ views have also contributed plans to develop a PREPARE centre where the whole programme can be delivered and patients can benefit from peer-to-peer support.

On announcing the award winners the judges said: “This is a superb example of integrated, meaningful, well planned patient involvement which is central to the project. While PPI is often an added afterthought to projects, collaboration with patients is at the heart of PREPARE”

The PREPARE team worked with artist Sandra Howgate to produce this image describing their work

 

Category 3 – Patient/Service User/Carer with influence

Category 3 – Patient/Service User/Carer with influence

This award will recognise an individual who has actively connected service users, clinicians, researchers and other healthcare professionals and promoted the opportunities in collaborative working to improve research and healthcare.

What the judging panel will be looking for:

1. Activity that has been designed and delivered with the input of patients and carers from as an early stage as possible

2.Attempts to involve and engage people who are less likely to be heard but have much to say for example children and young people, those with learning difficulties or sensory impairments and people from minority communities including carers

3.Reflection and a desire to improve the practice of patient and carer involvement moving it away from a tick-box exercise to a two-way learning process

Category 2 – Early career researcher, including PhD students, service user researchers and members of CLAHRC Fellowship Programmes

This award will recognise an early career researcher, PhD student, service user researcher or Fellow. They will need to demonstrate their commitment to developing their experience and expertise in working with patients, service users, carers, families and communities in the design, delivery and evaluation of their work to ensure that their research or improvement addresses the needs and preferences of those using healthcare services.

This award is open to researchers who can demonstrate a direct connection with the London CLAHRC programmes for example through funding, supervision and mentoring or scrutiny in the CLAHRC governance structures.

Before entering, read and consider the following success criteria carefully

What the judging panel will be looking for:

1. Activity that has been designed and delivered with the input of patients and carers from as an early stage as possible

2.Attempts to involve and engage people who are less likely to be heard but have much to say for example children and young people, those with learning difficulties or sensory impairments and people from minority communities including carers

3.Reflection and a desire to improve the practice of patient and carer involvement moving it away from a tick-box exercise to a two-way learning process

Category 1 – Teams working with patients, service users, carers, families and communities

This award recognises research and improvement teams who can demonstrate how they have worked with patients, services users, carers, families and communities to ensure that those on the receiving end of research and care influence the process and the end results.

This award is open to applied health research and improvement teams who can demonstrate a direct connection with the London CLAHRC programmes for example through being funded or affiliated, or subject to scrutiny in the CLAHRC governance structures.

Before entering, read and consider the following success criteria carefully

What the judging panel will be looking for:

1. Activity that has been designed and delivered with the input of patients and carers from as an early stage as possible

2. Attempts to involve and engage people who are less likely to be heard but have much to say for example children and young people, those with learning difficulties or sensory impairments and people from minority communities including carers

3. Reflection and a desire to improve the practice of patient and carer involvement moving it away from a tick-box exercise to a two-way learning process

GP-based testing for HIV is cost-effective in areas of high prevalence and should be rolled out in 74 local authorities

New CLAHRC research published in The Lancet HIV has found that offering HIV testing to people on registration with a new GP in areas of high prevalence of the disease is cost-effective and will save lives.

Researchers based at the London School of Hygiene & Tropical Medicine and Queen Mary University of London (QMUL) carried out the study in areas with high prevalence of HIV – involving 86,000 people from 40 GP surgeries.

The promising results prompted CLAHRC researchers to call for a roll-out of HIV screening to all 74 high HIV prevalence local authorities in England (those with more than two diagnosed HIV infections per 1,000 adults).

HIV treatment is expensive, particularly when diagnosis is late. Early diagnosis means earlier intervention and treatment, saving the NHS money.

Building on earlier research from a trial in Hackney – a socioeconomically deprived inner London borough with an HIV prevalence rate of 8 per 1000 adults – the trial involved 40 general practices where they tested the effect of rapid fingerprick HIV testing as part of the standard health check during registration. They found it led to a four-fold higher HIV diagnosis rate.

Using a mathematical model that includes all the costs associated with HIV testing and treatment, the team now show that primary care HIV screening in high prevalence settings becomes cost-effective in 33 years (according to National Institute for Health and Care Excellence [NICE] criteria).

The CLAHRC North Thames study was carried out in partnership with NHS City and Hackney and involved University College London, Homerton University Hospital NHS Foundation Trust, University of Warwick, and University of British Columbia.

Dr Werner Leber from QMUL said: “We’ve shown that HIV screening in UK primary care is cost effective and potentially cost saving, which is contrary to widespread belief. This is an important finding given today’s austerity. Financial pressures, particularly within local authority’s public health budgets, mean that the costs of HIV testing are under intense scrutiny, and in some areas investment in testing has fallen.”

Read the full paper

Rebecca F Baggaley, Michael A Irvine, Werner Leber, Valentina Cambiano, Jose Figueroa, Heather McMullen, Jane Anderson, Andreia C Santos, Fern Terris-Prestholt, Alec Miners, T. Déirdre Hollingsworth, Chris J Griffiths.

Cost-effectiveness of screening for HIV in primary care: a health economics modelling analysis.

The Lancet HIV. DOI:10.1016/S2352-3018(17)30123-6

Evaluating a Healthy Schools programme – our report and recommendations published

School-based interventions to increase health and wellbeing

The health and wellbeing of school children is a pressing concern in England, with a  growing prevalence of obesity and diabetes in childhood. It is also widely recognised that a child’s emotional health and wellbeing influences their cognitive development and learning, as well as their physical and social health and mental wellbeing in adulthood.

These increased concerns, aligned with a better recognition of the emotional and mental health needs of children, led the Greater London Authority (GLA) to develop and co-ordinate a school based health programme to improve health and wellbeing for all pupils in London.

The result was the development of the GLA’s Healthy Schools London programme (HSL) launched in April 2013 and co-ordinated by the Greater London Authority (GLA). The programme encourages schools to adopt a whole school approach to combat the specific health and wellbeing needs of their pupils by developing their policies and procedures.  HSL recognises and rewards the schools’ endeavours through a system of awards: Bronze, Silver, and Gold.

A CLAHRC North Thames project recently completed a two-year evaluation of the programme. The aim of the evaluation was to assess the contribution of the programme to improving educational attainment, and health and well-being, among schoolchildren in London. It was funded jointly by the GLA and the CLAHRC, and was conducted between 2014 and 2016 by Dr Harry Rutter and Dr Andrew Barnfield from the London School of Hygiene and Tropical Medicine (LSHTM).

We conducted literature reviews, focus groups in 20 schools, interviews with 6 directors of public health and directors of children’s services, focus groups with borough leads, interviews with the GLA core team and borough leads, and two assessment visits to special schools. We also conducted an online survey across all participating schools, with a total of over 450 responses.

Was HSL effective in its aims?

Our evaluation

  • Assessed the potential for the HSL programme to influence educational achievement, promote healthy lifestyle behaviours, and reduce health inequalities in London
  • Investigated the extent to which becoming a Healthy School is associated with changes in school-level policies, and activities.
  • Assessed the nature and level of engagement with the HSL programme by schools, including any differential uptake by socio-economic factors, and to understand the drivers and barriers to becoming a Healthy School
  • Provided recommendations to inform the ongoing development of the HSL programme

The evaluation concluded that HSL provides a valuable mechanism to encourage change at school level. Among a suite of recommendations, the evaluation suggested that:

  • HSL would be strengthened by encouraging schools to work more closely together.
  • A mentoring programme could help to spread best practice between schools,
  • There is scope for stronger links between school sand local communities.
  • The implementation of a programme to enhance health and wellbeing provision in early year’s settings could provide an additional mechanism for health improvement, and promote school preparedness among the capital’s children.

Read the full report and recommendations

 

NEON project makes the news

Our innovative Nurture Early for Optimal Nutrition (NEON) project has made the headlines..in India!. The project is exploring whether a South Asian model proven to promote healthy nutrition in children can “travel” successfully to the UK and help children of Bangladeshi origin in East London.Professor Monica Lakhanpaul is leading the project and spoke to The Goan newspaper about the bi-directional exchange of knowledge that is making a difference in one of London’s less advantaged communities.

 

 

 

 

 

 

News 3

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report on previous course

Lorem Ipsum is simply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry’s standard dummy text ever since the 1500s, when an unknown printer took a galley of type and scrambled it to make a type specimen book. It has survived not only five centuries, but also the leap into electronic typesetting, remaining essentially unchanged. It was popularised in the 1960s with the release of Letraset sheets containing Lorem Ipsum passages, and more recently with desktop publishing software like Aldus PageMaker including versions of Lorem Ipsum.