In August 2014 I finished a PhD with Imperial College, MRC-PHE centre for environment and health, focusing on the effects of personal air pollution. Apart from a background in science, I always had an interest in communicating scientific knowledge. During my PhD I therefore volunteered within science and museum communications for the Medical Research Council, London Science Museum, Medway Science Centre and Victoria and Albert Museum of Childhood. I joined the NIHR CLAHRC funded School-based Asthma Project (SAP) in September 2014, for which I am responsible for Outreach and Learning. My role includes recruitment and liaison with currently 50 different partner organisations, of which 24 are schools, others are research organisations, health organisations, and a variety of private companies. In the first year of the project I organised questionnaire sessions in our partner schools with altogether 799 asthmatic secondary school students. A current focus of my work is the content development and testing of workshops and their educational elements, planned as part of a school-based asthma self-management intervention. One element of the planned workshops is an asthma game for which the final development and wider dissemination (both for a board game and a computer game version) are planned for 2016.
Our school asthma project is working with parents teachers and pupils from schools across to improve the ways in which schools can support young people with asthma.
The CLAHRC is working with young people to develop a suite of resources to encourage open discussion of the condition and improve understanding among peers.
This includes a school-based self-management intervention consisting of educational board and computer game which improves knowledge of triggers and inhalers, as well as encouraging discussion of asthma between pupils .
Our asthma board game (below) has gone down well with young people
As well as we have taken the game on tour at various events and open days where it has proved a hit –
Harry is CLAHRC Research Fellow and a Senior Research Nurse working for the North Thames Clinical Research Network. His clinical background is in paediatric/neonatal intensive care and clinical research. He completed his BSc in Nursing with magna cum laude honours from the University of Santo Tomas in the Philippines. He has completed an MRes in Clinical Practice and was awarded a distinction for his thesis on self management of children with IBD. As part of his dissemination of his results, Crohn’s and Colitis Foundation of America awarded him a conference grant to present his poster on the American Advances in IBD conference.
Harry’s passion is to use participatory methodologies that listens to children’s voices using developmentally appropriate interview methods. Currently, he is spending a year on developing a PhD proposal investigating paediatric fatigue among young people with IBD.
Dipesh Patel is a post-doctoral Advanced Orthoptist working at Moorfields Eye Hospital. His one-year CLAHRC HEE NCEL fellowship will be spent investigating factors affecting treatment outcomes in children with amblyopia (lazy eye).
Dipesh has been an Orthoptist for 10 years, and has previously researched visual field testing in children with glaucoma and neuro-ophthalmic disease.
A new case study details how young people played their part in improving diabetes services in East London.
The document outlines the origins of a “Young Commissioner” scheme to help ensure diabetes serves for children and young people were redesigned to be more appropriate and acceptable to young people in the borough of Newham.
It sets out how they were recruited and supported, how the CLAHRC provided training and support, and the engagement work they did (see image above) to get a picture of how well diabetes services were planned and delivered in the borough.