Breaking down the barriers to research

What is preventing research with children and young people (CYP) with life-limiting conditions and life-threatening illnesses (LLC/LTI)?


Barriers to Research Access: Voices, Experiences and Solutions, or BRAVES is a programme of research aiming to explore the barriers to conducting research and some possible solutions


The team recently presented two posters at the 17th World Congress of the European Association for Palliative Care (EAPC)


 

 

The first gives an overview of the whole project

This poster was recognised as 1 of 3 best/highest scoring poster abstracts in the Palliative care in Children and Adolescents category

 

 

The second focuses on work with research ethics committees who provide approval for work to take place with this vulnerable group of patients

Introduction to Economic Evaluation – Tuesday 29th October 2019

Do you need to demonstrate the economic impact of projects in your organisation?

Do you want to assess the outcomes and sustainability of a new service?

Are you tasked with carrying out an economic evaluation, but don’t know where to start?

This one day, hands-on workshop aims to provide an introduction to addressing these challenges. It is run by the NIHR CLAHRC North Thames Academy. The course is aimed at staff in frontline services in the NHS and local government, who have limited experience of conducting economic evaluations and decision making analysis.

After attending this course, you will have the skills and knowledge to undertake your own simple economic evaluation of a local intervention or service, and be able to appraise other evaluations.

The course will cover:

  • introduce the basic principles of economic evaluation methods
  • explain how to assess the costs of an intervention/service
  • explain how to measure and value outcomes of an intervention/service
  • give practical examples of economic evaluation analysis
  • help to understand how to use of economic evaluation in decision making
  • offer the opportunity to discuss in small groups the economic evaluation you are doing or thinking of doing. A facilitator will help scope your economic evaluation, draft its core elements, identify the data you will need to use, think how you could overcome information or data gaps. 

This workshop is suitable for staff from NHS Trusts, Local Authorities and CCGs who need to evaluate local programmes or services from an economic perspective as part of their work. It is not aimed at academics and/or researchers.

In order to be most beneficial for the participants, we invite applications from individuals who are carrying out or soon will need to carry out an economic evaluation of a service/intervention. In the selection process, we will give priority to applications providing a detailed description of such projects. Groups of people working on the same project are encouraged to apply. 

No previous knowledge of economics is required (or experience of study design and statistics), however an interest in economics and being comfortable with numbers is desirable.

All participants will receive a certificate of attendance.

Cost – This course is free for staff working in NIHR CLAHRC North Thames partner organisations (please click here to see a list of our partners). There is a delegate fee of £250 for other attendees.

Registration will open on 22nd July 2019.

Please note, a cancellation fee of £100 will be charged to both partner and non-partner delegates in the event of non-attendance without notice after 5pm, Tuesday 22nd October 2019.

For more information please contact clahrc.academy@ucl.ac.uk

Introduction to Evaluation – Thursday 19th September 2019

Do you need to demonstrate the impact of projects in your organisation?

Do you want to improve the design and implementation of your programme?

Are you tasked with carrying out an evaluation, but don’t know where to start?

This one day, hands-on workshop, run by the NIHR CLAHRC NorthThames Academy, addresses these challenges.  It is aimed at staff from NHS Trusts, CCGs and Local Authorities, who have limited experience of conducting service evaluations.

After attending this workshop, you will have the skills and knowledge to undertake your own evaluation of a local programme or service.

The course covers:

  • Different types of evaluation, including their pros and cons
  • How to select suitable methods and approaches for evaluating a local programme or service
  • Practical skills and tips in using evaluation methods and approaches
  • Ways of sharing your evaluation findings to make an impact

This workshop is suitable for staff from NHS Trusts, Local Authorities and CCGs.  It is not aimed at academics and/or researchers.  Participants should attend the course with an evaluation in mind that they may need to carry out.  No previous experience of study design, statistics or evaluation is needed.

All participants will receive a certificate of attendance.

Cost – This course is free for staff working in NIHR CLAHRC North Thames partner organisations (please click here to see a list of our partners). There is adelegate fee of £250 for other attendees.

Registration – Please complete the registration form and email to clahrc.academy@ucl.ac.uk by 5pm, Friday 12th July 2019.

Please note, a cancellation fee of £100 will be charged to both partner and non-partner delegates in the event of non-attendance without notice after 5pm, Thursday 12th September 2019

How can we help Emergency Departments better prepare for the arrival of patients with acute mental health problems?

New CLAHRC research offers the NHS a great opportunity to better support patients with mental health issues arriving at Emergency Departments.

CLAHRC researcher Dr Helen Barratt and colleagues have used NHS data to describe the population of patients who attend Emergency Departments in England, including their sociodemographic characteristics. As part of the first national study of Emergency Department mental health attendances, the researchers analysed over 6 million adult visits at 97 English NHS Trusts between April 2013 and March 2014.

The data will be invaluable to the NHS in estimating the demand for liaison psychiatry services, and resourcing A & E departments to deal with patients presenting with mental health issues in what is already a stressful environment. This work is timely as recently new NHS Access standards for emergency mental health care have been proposed – obliging Trusts to strengthen the availability of care ‘out of hours’ and the provision of resources for individuals requiring admission.

“Those coming to A&E will receive a response from a 24/7 liaison psychiatry team (or equivalent children’s and young people’s service) within the first hour of their referral, and will receive the appropriate, timely support to meet their needs and an evidence-based package of care.”
Clinically-led Review of NHS Access Standards Interim Report from the NHS National Medical Director

You can see the key figures in the infographic below

 

You can see more of the key figures in a presentation Helen put together below

 

 

What adaptations are needed to deliver psychological therapies in inpatient settings?

Psychological therapies (sometimes referred to as ‘talking therapies’) offer a chance for patients to explore difficulties in a safe and confidential setting. The therapy is delivered by a qualified professional, working in partnership with a patient to help them better understand feelings that arise from their past experiences, and attitudes towards them. Evidence suggests these therapies can make a big impact on psychiatric patients current and future wellbeing. However, they are a challenge to deliver in inpatient environments due to the short-term nature of many inpatients’ stay, added to the complex needs they often present with.

Dr Lisa Wood is a Care Pathway Lead Psychologist at North East London NHS Foundation Trust (NELFT) as well as a Lecturer in Clinical Psychology at the University of Essex. Dr Wood spent a year with the CLAHRC as part of a Fellowship funded by HEE NCEL to hone her research skills and develop research interests in her specialist area – understanding the lived experience of psychosis from a service user perspective.

In newly published research, Lisa explored the adaptations required to deliver psychological therapies to this population from the perspective of inpatient psychological practitioners. Through interviews with inpatient psychological practitioners, Dr Wood and her research team sought the adaptations required to deliver psychological interventions in this context.

Read the paper

Qual Health Res. 2019 Apr 23:1049732319843499. doi: 10.1177/1049732319843499
Psychologists’ Perspectives on the implementation of Psychological Therapy for Psychosis in the Acute Psychiatric Inpatient Setting.
Wood L Williams C Billings J Johnson S
https://www.ncbi.nlm.nih.gov/pubmed/31014190

 

After the trial: how a programme to improve the health care response to domestic violence and abuse fares in the real-world NHS

How does an intervention developed and tested by researchers make its way to the front-line of health care?

This is the topic of a new blog by Dr Natalia Lewis, a Research Fellow at Centre for Academic Primary Care in the University of Bristol.

Natalia is part of the research team investigating the impact of IRIS (Identification and Referral to Improve Safety), a general-practice-based Domestic Violence and Abuse (DVA) training, support and referral programme.

After the trial: how a programme to improve the health care response to domestic violence and abuse fares in the real-world NHS

BBC features CLAHRC research into pollution and young lungs

Professor Chris Griffiths featured on BBC’s the One Show last night talking about the impact of pollution on young lungs. The topical affairs programme ran a feature on the impact of poor air quality on children and young peoples (CYP) development.

Professor Griffiths is leading research into the impact of the Capitals’ upcoming Ultra Low Emission Zone (ULEZ) – introduced on April 1st – on both CYP respiratory health and physical activity levels. The ULEZ is predicted to deliver major improvements in London’s air quality, reducing nitrogen dioxide and particulate exposures in central London.

The ULEZ comes into force on April 1st

 

 

The feature runs from 6 minutes 30 seconds into last nights show

https://www.bbc.co.uk/iplayer/episode/m0003mmj/the-one-show-27032019 

You can read about this recently launched CLAHRC study here;

https://clahrc-norththames.nihr.ac.uk/systems_and_models_theme/impcact-of-ulez-on-childrens-physical-activity-and-weight/

 

Becoming Research Active: 26th June 2019; 9am-5pm

Are you a nurse, allied health professional, public health or local government member of staff who is interested in research or who has had some exposure to research?  Our workshop is suitable for staff from NHS Trusts, CCGs, and Local Authorities who are keen to become involved in research.

Engaging in research is a great way to address the questions that often arise in health care.  It can also play a vital role in producting new evidence and new knowledge for decision-making to improve health care.

This one day, practical workshop provides an introduction to the research process to enable NHS and local government staff to engage in research activity.  The course is run by the CLAHRC North Thames Academy, together with the Research Design Service London (east London arm) and Clinical Research Network North Thames.

This introductory level course is a first step on the journey towards becoming “research active”, either by developing your own small project or getting involved in other ways e.g. collaborating on research studies, assisting clients / patients in your care to take part in research, being a (critical) research ‘consumer’ or helping to shape research priorities, design and delivery.  We ask that participants attend the workshop with a research idea, innovation, or change that they would like to plan for, or collaborate on with researchers.

By the end of the course participants will:

  • Understand the research process, including the principles behind good research design and planning for dissemination and impact
  • Understand the different roles within a research team and identify the points at which you can become involved
  • Be able to apply criteria to judge the potential value and feasibility of a research project idea
  • Have a basic understanding of research governance and ethics requirements, and know where to find out more
  • Know how to involve patients and the public in every stage of research, and understand how it could benefit the research
  • Know how to access relevant resources or the help available across North Thames to design, plan and fund research

This workshop is not aimed at academics and/or researchers.

*e.g. you might have done a Masters level module in collecting and analysing data, or critical appraisal of research, or have helped to support research in your organisation or attended another one of our Academy courses.

All participants will receive a certificate of attendance.

Cost – This course is free for staff working in NIHR CLAHRC North Thames partner organisations (a list of our partners is available on our website). There is a delegate fee of £250 for other attendees.

Venue – Central London

Registration – Please complete the registration form and email to clahrc.academy@ucl.ac.uk by 5pm, Friday 26th April 2019.

Please note,a cancellation fee of £100 will be charged to both partner and non-partner delegates in the event of non-attendance without notic after 5pm on 19th June 2019.

For more information please contact clahrc.academy@ucl.ac.uk