Patient and public involvement – learning and sharing with Peninsula CLAHRC

We recently went on a “learning exchange” visit to our friends and colleagues at NIHR CLAHRC South West Peninsula (PenCLAHRC).

It was a chance for researchers, staff and patient and public contributors from both CLAHRCs to meet each other.

We also took advantage of the combined expertise and experience of the assembled group to look at a research study early in development.

Read a report of the day here.

 

 

Brian Turley Awards for Patient and Public Involvement

CLAHRC North Thames has joined colleagues at CLAHRC North West London (NWL) and CLAHRC South London to present the Brian Turley Awards for Patient and Carer Involvement

Winners have been announced! Click here to see who the winners and runners up were in each category

The three London CLAHRCS are proud to present these awards, created to celebrate and promote patient and carer involvement in healthcare research and improvement. The awards honour the memory of Brian Turley, a dedicated and committed patient advocate and disability rights campaigner who sadly died unexpectedly in February 2016.

The awards honour the contribution of Brian Turley a tireless patient advocate and campaigner for disability rights

The awards aim to celebrate and promote patient and carer involvement in healthcare research and improvement – aiming to

  • Raise the profile of involvement
  • Showcase examples from practice
  • Promote reflection and shared learning
  • Discourage ‘tick box practice’

For all three awards, we welcome nominations from teams and individuals who are actively and currently involved or working with patients/carers and the wider community.

Winners will get the chance to work with artist Sandra Howgate to develop materials of their choice – a picture, flyer, poster or other graphic that represents their work

Read about last year’s winners

Closing date 12 Noon on Thursday 1st March 2018

Background information to help you prepare

Information about eligibility and how to nominate (Brian_Turley_Awards_Eligibility criteria)

Information about preparing a nomination (Brian_Turley_Awards_Nomination information)

Nomination Form (Brian_Turley_Awards_Nomination form)

The awards categories

Category 1 – Teams working with patients, service users, carers, families and communities

Category 2 – Early career researcher, including PhD students, service user researchers and members of CLAHRC Fellowship Programmes

Category 3 – Patient/Service User/Carer with influence

For more information contact:

Rachel Matthews – NIHR CLAHRC Northwest London r.matthews@imperial.ac.uk

07889 179 034

Stan Papoulias – NIHR CLAHRC South London konstantina.papoulia@kcl.ac.uk 

+44 (0) 20 7848 5077

Steven Towndrow – NIHR CLAHRC North Thames s.towndrow@ucl.ac.uk

+44 (0)203 108 3241

The role of board-level clinical leaders in quality improvement

CLAHRC researcher Dr Lorelei Jones has been invited to deliver a seminar on the role of clinical leaders on NHS boards in quality improvement (QI).

The Health Services Research Centre is a leading authority on health care management and has invited Lorelei as part of their prestigious events series.

The poster below gives an overview of what she will be covering.

Dr Jones is part of our iQUASER study looking at how NHS boards implement QUASER – a dialogical tool for senior hospital leaders to develop and implement QI strategies across their organisation.

Lorelei will be presenting some results from her extensive fieldwork among NHS boards for this research, which involved interviewing board members, observing meetings and scrutinising papers and documents.

Professor Jonathan Grigg on the dangers of air pollution underground

Professor Jonathan Grigg, a practicing pediatrician who leads our Child Health theme has outlined the dangers of air pollution underground.

Millions of the Capital’s tube users are unaware of the greatly increased density of air, and much higher levels of harmful pollutants on the subway system compared to what they breathe above ground.

See Professor Grigg interviewed by ITV London News this week.

Mayor of London Sadiq Khan launched an air quality campaign this week which will see restrictions on the most polluting vehicles
https://www.london.gov.uk/press-releases/mayoral/mayor-unveils-hard-hitting-air-quality-campaign 

Read a blog by Professor Grigg on London’s “toxic air emergency”
https://www.healthylondon.org/latest/blog/londons-toxic-air

Learning exchange trip to PenCLAHRC a success

On Tuesday September 26th CLAHRC North Thames’ public and patient partners took part in a learning exchange visit to Peninsula CLAHRC (PenCLAHRC).

The trip to PenCLAHRC’s Exeter office was part of our wider efforts to make connections with other CLAHRCs, especially those serving different populations in settings different from ours.

A delegation of CLAHRC North Thames public partners, staff and students (below right) visited colleagues at PenCLAHRC to make connections, compare notes on involving people in research and discuss future working together. Eight members of our lay Research Advisory Panel joined our PPI/E officer Steven Towndrow and CLAHRC PhD Nehla Djelloui who is investigating involving people in large scale service change in the NHS.

We were hosted by

We were welcomed by PenCLAHRC Director Professor Stuart Logan who set out the aims and objectives of PenCLAHRC and their partnership working with patients and the public.

After some introductions and networking we then looked at a research study early in development. Both sets of patient and public contributors provided the benefit of their experience and expertise to help shape the research.

Our thanks to Kristin and the PenCLAHRC PPI team –  for making us so welcome and for all their work in making the day a success. We are planning a return visit which will see PenCLAHRC come to London in the new year.

Funding success to develop research on vitamin B12 trial for pregnant women in India

Professor Monica Lakhanpaul, Principal Investigator on our NEON study has successfully applied for funding to develop a major research programme addressing the needs of women and children in India.

Professor Lakhanpaul (pictured below) is leading an application in respond to a call supported by a number of organisations from the UK and India (see below) under the title Global Research Programme; addressing the health needs of women and children in disadvantaged populations globally

The Department of Biotechnology (DBT) in India, in collaboration with Department of International Development(DFID), the Economic and Social Research Council (ESRC) and the Medical Research Council (MRC) joint call to fund global health research addressing the health needs of women and children

Successful applicants will build partnerships across the UK and India to execute research that will impact the ability to prevent, diagnose and manage prevalent chronic and infectious diseases facing women and their unborn children in low-and middle-income (LMIC).

By successfully navigating the initial round of the application process (“the concept proposal”) Professor Lakhanpaul has secured a £4000 travel grant to support the development of a partnership for the full proposal development process. Her initial concept proposal was for a vitamin on vitamin B12 trial in pregnant women and children in India.

A full proposal will be made in September for the larger pot of funding.

Monica’s work with the Bangladeshi community in East London is also referenced in a recent blog Can women talking save lives? Reducing inequalities in newborn mortality in India, Nepal, Bangladesh and Malawi

 

Developing innovative approaches to increasing awareness of asthma control among young people

In Control

Based on findings from research previously conducted by the school-based asthma project, part of our Child and Adolescent Health Theme, the team have worked with Greenwich & Lewisham Young People’s Theatre to develop a theatre production addressing asthma control. The theatre piece In Control has been performed in schools since June 2017, and was recently featured as part of the British Science Festival held in Brighton 5th – 9th September 2017.

Photo credit: Gerard Monaco

The aim of the play is to change the perception and image of asthma among young people, in order to help those with asthma feel supported and therefore better able to manage their condition. Written as a collaboration between the theatre and research teams, young people with asthma were involved to advise on the storylines and dialogue to make the play as real and as accessible as possible.

In Control follows a 15-year old girl, Jazz with asthma through a week of detention with two of her classmates. Usually confident and outgoing, Jazz hides that she has asthma and is reluctant to accept help when finding it difficult to breathe. After the play, the protagonist stays in character as the students participate in a discussion of the themes raised, facilitated by the other two actors. Engaging the school audiences through theatre gives a new angle from which to involve young people in thinking and talking about the challenges faced by those with asthma.

Dr Gioia Mosler from QMUL said: “It was an amazing experience seeing the direct emotional effect that a play can have on these school groups. We have been hugely encouraged by the initial reactions to this project and we are already starting to study how effective this kind of intervention can be to help young people deal with their asthma.”

Dr Jonathan Grigg, professor of paediatric respiratory medicine at QMUL and project lead added: “We must develop innovative ways of improving asthma outcomes in children and young people. Our work with Greenwich & Lewisham Young People’s Theatre has identified a new space where interventions can be delivered and tested outside the standard medical model.”

Photo credit: Tunde Euba

Dr Gioia Mosler, Outreach and Learning Manager for the school-based asthma project, and Tunde Euba, Arts Practitioner working with Greenwich & Lewisham Young People’s Theatre, have written about the development of In Control for The Lancet: Taking Control Through Drama 

 Asthma Dodge

Also featured at the British Science Festival, was Asthma Dodge – a smartphone game developed in collaboration with the Centre of the Cell, a science education centre at Queen Mary University of London. In the game, the player takes the role of a young person with asthma. The aim is to run as fast as possible to reach the Centre of the Cell, dodging the asthma triggers along the way. Information about asthma is incorporated into the game, such as how asthma affects the airways, how different medication works, and the different types of triggers for asthma symptoms.

The ‘Asthma Dodge’ game can be downloaded from the Apple and Google Play stores; visit the Centre of the Cell website to read more. #Asthma Dodge

School-based Questionnaire on Asthma Control in London Secondary School Children

In a previous study from the school-based asthma project team, questionnaires completed by over 750 secondary school-aged students from schools in London revealed that only 54% of participants were managing their asthma well. Out of those whose asthma was not well controlled, almost half thought they had good asthma control. The school-based questionnaire also highlighted that students often feel uncomfortable about using an inhaler at school.

A short summary of this study can be found here, or read the full paper here.

 

 

Introducing innovation in the NHS – what is your experience?

Still time to tell us your experience of how innovation is adopted in the NHS

We need your views; complete the DECIDE Survey by September 30th

Decisions in health Care to Introduce or Diffuse Innovations using Evidence (or DECIDE) – is a major study investigating the role of evidence in decisions to introduce innovation.

We are seeking the views of people working in the NHS.

We want to know

  • what different types of evidence are used when making decisions to adopt or diffuse innovations in the NHS?
  • what is your experience of decision-making in the NHS when it comes to spreading innovation?

Taking part in this survey is voluntary. No personal details will be asked of you in this survey, and published reports about this survey will not contain any personal details

The survey should take no more than 10 minutes to complete.

Congratulations to CLAHRC HEE NCEL Fellow Pinkie Chambers

Pinkie Chambers, a senior pharmacist at UCLH and former CLAHRC HEE NCEL Fellow is celebrating success in securing a prestigious NIHR Fellowship award.

After spending a year with the CLAHRC to hone her research skills, and against stiff competition, Pinkie secured a Doctoral Research Fellowship (DRF), which offers 3 years full-time funding (or 4 or 5 years part-time) to undertake a PhD.

The DRF is aimed at individuals, of outstanding potential, early in their research careers.

The Fellowship scheme aims to fast-track them through a customised research training programme in an environment reflecting their individual talents and training needs.

It is anticipated that successful applicants would become independent research leaders within 6 to 10 years of completing the DRF award.

During her year with us as a CLAHRC/HEE NCEL Fellow Pinkie developed her skills and worked on her application to the NIHR.

Her areas of interest include improving the chemotherapy pathway for cancer patients, and supporting patients to self-administer some of their blood tests to avoid hospital visits.

As well as her work as a Senior pharmacist at UCLH, Pinkie is also Joint Chair of the London Cancer Chemotherapy Expert Reference Group.

In particular Pinkie was commended by the NIHR for her efforts to involve patients and the public in her work which were described as “exceptional” – thanks in no small part to the CLAHRC’ Research Advisory Panel who Pinkie worked with during her CLAHRC/HEE NCEL Fellowship and who she presented to twice.

Read more about Pinkie’s time with us here

Our congratulations to Pinkie and best wishes for her future career

We need your views on how innovation spreads in the NHS

We need your views; complete the DECIDE Survey

Decisions in health Care to Introduce or Diffuse Innovations using Evidence (or DECIDE) is a two year study funded by the Health Foundation to investigate the role of evidence in decisions to introduce innovation. This survey is asking for your views about different types of evidence that are used when making decisions to adopt or diffuse innovations in the NHS.

Innovation in the NHS can take many different forms. It usually involves developing a new idea to meet a health care need. Often innovation may be related to clinical or administrative processes, but it may also involve the development of new medical technologies or clinical tools.

Examples of health care innovations might be information systems, surgical equipment, new drugs and new therapeutic uses for drugs or medical devices. An innovation does not have to be completely novel – for example, you can adopt a service development that is being done elsewhere and it is still an innovation in your organisation and in your local context.

We are interested in your experience of decision-making in the NHS and the kinds of evidence that you prioritise in your decision-making when deciding whether or not to adopt an innovation.

Taking part in this survey is voluntary. No personal details will be asked of you in this survey, and published reports about this survey will not contain any personal details

The survey should take no more than 10 minutes to complete.