Brian Turley Awards for Patient and Carer Involvement Collaboration for Leadership and Applied Health Research and Care Programmes in London
Based at St Mary’s Hospital in Paddington, the PREPARE team, is a programme for patients undergoing oesophago-gastric surgery that aims to improve their surgical outcomes by improving their physical and mental well-being prior to and after their surgery. Each patient receives a personalised programme to match their individual needs, abilities and goals.
The programme provides coaching and tailored support in the areas of:
Asking about medications
Removing bad habits
Patients are involved at a strategic level in the development of the PREPARE programme, working with the clinical team to co-design the structure and goals through formal workshops and informal interactions.
An example of meaningful outcomes from patient involvement include the creation of a training clinic 1-2 weeks prior to surgery to teach patients and their carers on home jejunostomy feeds. This replaced post-surgery in-hospital training which patients described as too intimidating and did not involve carers. Patients’ views have also contributed plans to develop a PREPARE centre where the whole programme can be delivered and patients can benefit from peer-to-peer support.
On announcing the award winners the judges said: “This is a superb example of integrated, meaningful, well planned patient involvement which is central to the project. While PPI is often an added afterthought to projects, collaboration with patients is at the heart of PREPARE”
CLAHRC behaviour change researchers and PhDs Caroline Katzer and Marissa Mes were a big hit at the recent in ESPACOMP conference in Budapest Hungary. Caroline and Marissa presented to an audience of clinicians and allied health professionals interested in adherence
ESPACOMP (European Society for Patient Adherence, COMpliance and Persistence) promotes science concerned with the assessment of what patients do with medicines they have been prescribed – and the implications when they adhere, or don’t adhere to them. Their 2017 conference brought together behaviour change practitioners and researchers from across the world and both Marissa and Caroline’s presentation generated much interest and a host of questions from the audience.
Dr Chiara De Poli presented projections of the likely impact of the various interventions currently being used to prevent diabetes across England.
Dr Esther Kwong presented her work exploring the potential for patient reported outcomes measures (PROMs) – patient questionnaires used to measure measures health gain in patients undergoing a number of surgeries – to be used when patients were admitted as an emergency.
Jennifer Martin presented her work on participatory learning and action cycle in resource-limited settings.
Impact of interventions to prevent diabetes in England: a simulation model
A new Government green paper offers good news for those calling for joined up care between schools and local mental health services for children and young people.
For the first time the Government is formally recognising, and backing the role of schools as a platform for mental health services, encouraging education and the NHS to work together to offer a “whole-school approach” to mental health and well-being.
Professor Peter Fonagy, CLAHRC mental health lead and head of the Division of Psychology and Language Sciences at UCL, led a systematic review of the literature and influenced policy makers to secure this step-change in how mental health services are provided for young people in education.
Professor Fonagy commented: “Applied health research data was key in persuading ministers and civil servants that paraprofessionals working in education settings could bring about a step change in increasing access to evidence based mental health interventions and providing therapies early when they are most likely to be effective and to prevent more severe problems in the lives of children and young people.”
The Departments of Education and Health are now seeking stakeholders’ views.
This is now available to view via this link or clicking on the image below
Dr Pizzo’s presentation examined how money is best spent in patient treatment. Elena considered the average cost of breast cancer care per patient and outlines the challenges faced by health professionals and economists when deciding how treatment funding is allocated.
Dr Pizzo made a plea for health professionals, policy makers, industry and patients to work closely with health economists when making difficult decisions about where to allocate resources. In this case the topic was cancer but the message applies equally to many other specialties when NHS budgets are under pressure.
Decision-makers in public health can be confronted with a huge volume of data, evidence, reviews and summaries – from local and national sources. There is also an acknowledged gap between evidence and policy in public health.
In a recent blog on the EPPI centre website CLAHRC researchers Dylan Kneale and Antonio Rojas-García reflect on their work exploring the use of evidence in local public health decision-making – and raise the question – How much research is being wasted because it is not generalisable in local settings?
While reduced resources make judicious use of evidence more important than ever when deciding how and where to apply resources, researchers also need to understand, and better communicate, the generalisability of their research evidence to decision-makers working locally.