Patient and public involvement across CLAHRCs – collaborating and sharing knowledge with PenCLAHRC

As we reflect on five years of CLAHRC research, and look forward to the transition to their successor – Applied Research Collaborations (or ARCs) – we welcomed staff and patient and public contributors from CLAHRC South West Peninsula (PenCLAHRC) – for a learning exchange visit on July 4th.

The meeting was a follow up to our trip to PenCLAHRC last September where we established relationships between the respective involvement teams and patient/public partners on the start of a journey where we will collaborate and share good practice wherever we can.

CLAHRC North Thames Deputy Director Professor Mike Roberts (below) opened the meeting by welcoming our guests and highlighting their vital role in shaping the ARCs. Mike outlined the part they could play in implementation and adoption of research – a new area for ARCs compared to CLAHRCs and a part of the research cycle where patient and public involvement does not traditionally happen.

CLAHRC North Thames researchers Dr Darren Sharpe (University of East London, below) and Chloe Edridge (Anna Freud National Centre for Children and Families) joined the meeting to bring some researcher’s perspective to discussions, and both spoke of the impact involving people has made on their work.

We then welcomed Dr Helen MacDonald (below, left) a Public health registrar working across UCL and the London Borough of Islington on research funded by the Health Foundation. Helen is investigating Linking health and local government data at household level to understand social determinants of health. Linking local government information with health data offers an opportunity to better understand the local population’s combined health and social needs and to improve health and wellbeing in the widest sense across the Borough.

Specialist innovation and technology firm Snap Out are working with the Council on this programme – they facilitated a co-design session to shape the approach to seeking advice from the local Islington public and patient population about the linked dataset and the acceptable use of data as a result of the linked dataset.

This led to some in-depth discussions on how Islington might do this.

To close the meeting we then worked on what involvement in ARCs could look like, how we can collect and demonstrate the impact of involvement and how we can collaborate to improve research and make the most of the skills and experience across both CLAHRCS.

Our thanks to everyone who attended, to Steph Hume from the CLAHRC North Thames team, to Dr Kristin Liabo from PenCLAHRC for helping plan and facilitate the day, to Darren and Chloe for taking the time from their busy schedules to join us, and to UCL Estates and Security for helping make the meeting accessible.

Helping inspire the next generation of scientists

What triggers asthma symptoms?

Can you identify celebrities who live with the condition?

How much lung capacity do you have?

These were just some of the questions we asked visitors to our stall at the 2018 Barts and Queen Mary Science Festival held at Queen Mary University of London’s Mile End campus on 20 June.

The CLAHRC was represented by the My Asthma in School project team at the event aimed at secondary schools and young people interested in a career in science and medicine.

We took the chance to give visitors information on symptoms and managing the condition in schools, and raising awareness among young people they can better understand and support fellow pupils with asthma.

They could also test their lung capacity and put their results on a peak flow rate chart to see how they rated against other young people (below). The team is looking for schools to take part in their work. Signing up your school is quick and easy and will help your school support & empower young people with asthma.

The Exhibitors at the festival provided hands on activities to encourage students to learn more about careers in science.

Now in its eighth year, the 2018 festival was supported by the NIHR Biomedical Research Centre (BRC) at Barts Health NHS Trust and Queen Mary University of London, and Trials Connect.

Thank you to the team and for the invite from Barts and QMUL.

Celebrating research at UCLH

The CLAHRC was represented at the annual University College London Hospitals NHS Foundation Trust (UCLH) research open day held on July 5th at the hospital. The 2018 edition of the event had special significance in the year we celebrate the NHS’ 70th birthday.


We were one of over 30 stalls at the event, which celebrates research going on across UCLH, one of the CLAHRC’s key NHS partners.

Joining our public and patient involvement officer Steven (below left) at the stall were two CLAHRC researchers Emma Dunphy and Dr Rachel Muir.

Dr Muir (below left) gave visitors an opportunity to take part in a LEGO Serious Play demonstration. LEGO Serious Play is an innovative and engaging way to construct and share knowledge and stories in research, and was initially designed to be used in the corporate world to map complex problems through shared models and landscapes. Visitors got the chance to construct mini-models in 3 minute Lego Serious Play exercises. To find out more about Rachel’s work email r.muir@ucl.ac.uk

Emma (below left) is a Senior Physiotherapist based at Homerton University Hospital NHS Foundation Trust, and supports patients in their journey back to health after injury. Emma has developed TRAK, a web based resource to help with rehabilitation from Anterior Cruciate Ligament injuries – particularly common among active sportspeople.

TRAK includes diagrams and short films demonstrating exercises included in a patients rehab programme, and can complement face to face therapy for those in recovery from ACL injuries. For more info on TRAK contact Emma at emma.dunphy@ucl.ac.uk

Our thanks to Emma and Rachel for their time and for UCLH for inviting us to take part and for running an excellent event as ever.