Understanding Patient Experience in Clinical Trials

Summary

The numbers of patients being involved in clinical trials has been steadily increasing over the last decade. Whilst emerging evidence shows that research active clinical environments are linked to better patient outcomes, there has been little research into patient experiences of these trials. This project looks at the perceptions and experiences of patients involved in clinical research, particularly in relation to the transition between ‘standard care’ pathways and clinical research.

We are conducting a qualitative study using focus groups with health care professionals and clinical researchers to explore perceptions of patient transitions and map processes for patients transferring between clinical and research teams. Findings from this research will help build an evidence-base for improving patient experiences of transferring between clinical and research settings.

Researcher: Dr Rachel Muir, University College London

Supervisor: Dr Fiona Stevenson, University College London

Start date and duration: March 2017, one year

Partners and collaborators involved: University College London, University College London Hospitals NHS Foundation Trust, Health Education English working across North Central and East London.