Our school asthma project is working with parents teachers and pupils from schools across to improve the ways in which schools can support young people with asthma.
The CLAHRC is working with young people to develop a suite of resources to encourage open discussion of the condition and improve understanding among peers.
This includes a school-based self-management intervention consisting of educational board and computer game which improves knowledge of triggers and inhalers, as well as encouraging discussion of asthma between pupils .
Our asthma board game (below) has gone down well with young people
As well as we have taken the game on tour at various events and open days where it has proved a hit –
Professor Elizabeth Murray is Professor of e-Health and Primary Care at UCL. She established the UCL e-Health Unit in 2003 with a focus on the use of new technologies, such as the Internet, mobile phones and telemedicine, to improve health and health care. The Unit has grown rapidly and has an international reputation for high quality, innovative research.
The Innovations to improve pathway for people with COPD project is evaluating what works to better manage this respiratory condition. The team are measuring whether a variety of interventions will make GPs’ management of patients with the condition more effective and efficient in the long-term.
As part of our engagement with patients the project’s Senior Research Associate and Research Associate visited Havering Breathe Easy Group. The Breathe Easy network provides support and information for people living with a lung condition, and those looking after them.
As well as getting insight on living with COPD and variations in service patients’ can experience, researchers wanted to get a feel for what aspects of GP care were most important to patients’ health and quality of life.
We asked patients to identify what they thought were the most important interventions general practices provided to support COPD sufferers.
Our choices were based on a list of activities that the National Institute for Health and Care Excellence (NICE) – the independent organisation which decides which drugs and treatments are available on the NHS in England and Wales – has recommended should be delivered as part of COPD care from general practice.
What GP service patients valued most
What GP services patients valued least
Annual reviews with their GP
Smoking cessation advice
Pulmonary rehab (exercise and education and to manage their condition)
Spirometry Testing/Diagnosis (to diagnose a condition and monitor lung function)
Rescue Packs (of emergency medicines)
Self-management of care
How this will help our research
If we need to decide what weight we give to different outcomes, patients’ views of their relative importance could be one factor we consider.
Whether the measures we are using in our research are the ones patients consider most important
Patients’ views will provide useful pointers and questions for interviews with general practice staff that are part of our research
NIHR CLAHRC North Thames conducts ground-breaking research that directly impacts the health of patients with long term conditions and the health of the public.