Brian Turley Awards – winners and runners up announced

The inaugural London-wide Brian Turley Patient and Carer Involvement Awards took place at the NIHR CLAHRC North West London Spring Collaborative Learning Event on the 26th April 2018. The awards, presented by Simon Denegri (below centre), National Director for Patients and Public in Health Research, celebrate and promote patient and carer involvement in healthcare research and improvement.

The Awards were created in 2017 by NIHR CLAHRC Northwest London in memory of Brian Turley (below) a dedicated and committed patient advocate and disability rights campaigner who worked closely on a project that developed the ‘My Medication Passport’. The awards aim to sustain Brian’s values and commitment to partnerships between professionals and patients, carers and the public in research and service improvement work across the capital.

There were fifteen entries from CLAHRC-funded and supported work across the capital, and feedback on the quality of entries from judges and those interested in the results was positive –

“Once again, it is been a pleasure to read about all of the projects and my sense is the quality of the applications overall is even better than last year which is heartening. Lots of useful tips and the common theme seems to be, we should have started involving patients and carers earlier. Very useful!”

Brian Turley Award Judge Jocelyn Cornwell, Director Point of Care Foundation

“It was an honour for me to be involved in this way. I found the detail of the submissions very interesting and informative. It was reassuring to see so much good work being done”

Brian Turley Award Judge Iain Baxter, Service User

“The nominations were varied and interesting projects, the inclusion of different stakeholders was very good…. As a first-time judge I felt that this was an opportunity to learn and develop a new skill”

Brian Turley Award Judge Charity Gondwe, Carer

The winners were awarded with the opportunity to work with graphic artist Sandra Howgate to prepare a visual representation of their work to promote and share their story with others.

The winners

Patient / Service user / Carer with influence Award

Sophia Kotzamanis – a parent representative for BUDS [Better Use of data to improve parent satisfaction), an Chelsea & Westminster Hospital initiative  to improve the experience parents have when their baby is admitted to a neonatal unit. Sophia has also just been awarded a place on the NIHR CLAHRC NWL Improvement Leader Fellowship.

See how Sophia worked with artist Sandra Howgate to capture her work

Team working with patients, service users, carers, families and communities Award

St Mark’s Hospital Patient-Centred Inflammatory Bowel Disease (IBD) Care Model at London Northwest Healthcare NHS Trust – The team involved patients and the public in a programme to improve outpatient monitoring for patients with Inflammatory Bowel Disease (IBD) by addressing the mismatch between ‘need’ and ‘access’ to services.

You can see how the team worked with artist Sandra Howgate here

Early Career Researcher/PhD student/Service User Researcher/ Fellow Award

Stuart Green, Public Health Research Fellow based at Imperial College London – Stuart was an integral part of a quality improvement initiative within a mental health trust which aimed to improve cardiometabolic screening of patients through the introduction of a comprehensive physical health assessment.

See the results of Stuart’s work with Sandra Howgate here

Runners up for the awards were

Team working with patients, service users, carers, families and communities Award

The Alcohol research team at CLAHRC South LondonTackling the stigma of alcoholism

Early Career Researcher/PhD student/Service User Researcher/ Fellow Award) 

Physio at Homerton University Hospital NHS Foundation Trust Emma Dunphy – for designing a website for people recovering from knee surgery

Patient / Service user / Carer with influence Award 

Robin Lomas who worked with UCL researchers to co-investigate the – Impact of Welfare advice in GP practices

Robin Lomas receives her award from Simon Denegri

Each CLAHRC convened a panel of judges including senior researchers, early career researchers and members of the public and patients to consider the nominations and supporting evidence provided by entrants. In all cases they were impressed by the sheer variety of work in research and service improvement going on across the three London CLAHRCs, and the uniformly high standard of entries.

“Seeing experience and involvement embraced and championed is so fantastic. Working in this way is the future of healthcare; we need to embrace partnership working. Patients are part of the solution”

Brian Turley Award Judge Ellie Wharton, Project Manager

“As a newcomer to CLAHRC, coming from a social science research context, it has been an interesting and illuminating experience to be a judge for the Brian Turley Awards”

Brian Turley Award Judge Sam Miles, Researcher

We have shared detailed feedback with all entrants and strongly encouraged them to seek channels to share their involvements stories through newsletters, websites and in journals.

My health in school website up and running

CLAHRC researchers based at Queen Mary University working to positively transform the health of young people have launched the My health in school initiative and website.

‘My Health in School’ aims to support young people’s health via school-based projects.

The My health in school team (below) also includes researchers and communications experts from Queen Mary University of London, and will initially focus will on asthma in young people aged 11-13, building on CLAHRC research and engagement with young people.

Previous collaborations with pupils, teachers and parents has spawned a number of innovations to engage and educate young people living with asthma and their peers. Outputs already developed include board and computer games, a drama being delivered in a number of schools and a short film.

The team is working with Professor Jonathan Grigg, who leads several studies about asthma and lung health in children and young people.

As well as support from NIHR CLAHRC North Thames other key collaborators, include:

  • Centre of the Cell
  • GLYPT (Greenwich and Lewisham Young People’s Theatre)
  • Healthy London Partnership
  • Asthma UK Centre for Applied Research

The project is recruiting secondary schools across London – schools that are interested are encouraged to get in touch with the team – find out more about what being involved means here.

 

 

Why has the US opioid crisis not spread to the UK?

The misuse of and addiction to opioids, including prescription pain relievers, heroin, and synthetic opioids such as fentanyl, has been labelled “a serious national crisis” in the US affecting public health as well as social and economic welfare. The US opioid epidemic has yet to cross the Atlantic to the United Kingdom. But why has opioid use reached crisis point in the US but not in the UK?

In a blog for the London School of Economics US Centre Senior Physiotherapist and CLAHRC HEE NCEL Fellow Diarmuid Denneny and CLAHRC Academy Teaching Fellow Silvie Cooper discuss the roots of the US crisis, and the different culture of pain management in the UK which may explain why we have not experienced the same devastating consequences…………………..

 

The Impact of Delayed Discharge

The impact of delayed discharge—defined as ‘the period of continued hospital stay after a patient is deemed medically fit to leave hospital but is unable to do so for non-medical reasons’— is an important problem for health-care providers internationally. Costs to the National Health Service (NHS) in England associated with delayed discharge are approximately £100m per year.

Beyond the financial burden this places on a hard-pressed NHS and other services, there are real implications for inpatients’s health and safety and the stress levels of staff and different staff groups involved in the process.

Newly published CLAHRC research – summarised in our latest BITE – assesses the impact and experiences of delayed discharge at multiple levels, from the perspective of patients, health professionals and hospitals; and associated costs of delay.

Read the full paper

Rojas-García A, Turner S, Pizzo E, Hudson E, Thomas J, Raine R.
Impact and experiences of delayed discharge: A mixed-studies systematic review.
Health expectations : an international journal of public participation in health care and health policy. 2017. DOI: 10.1111/hex.12619

Two PhD studentships jointly funded by CLAHRC and the School for Public Health Research

Two National Institute for Health Research funded PhD studentships available

The National Institute of Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHRC) North Thames and the NIHR School for Public Health Research (SPHR) based at UCL invite applications for two jointly-funded 3-year PhD studentships at UCL to begin September 2018. Supervisors are drawn from across both the NIHR CLAHRC North Thames and NIHR SPHR. PhD projects align with the following NIHR CLAHRC North Thames and NIHR SPHR themes:

  • Children and Young People
  • Public Mental Health
  • Inequalities

The benefit of this collaborative initiative include joint funding from two high profile NIHR research collaborations, which facilitates the opportunity for unparalleled access to leading applied and public health experts, supervisors who are leaders in their field, channels for dissemination of research and participation in bespoke training and a strong network and community of graduate students and researchers. From the four topics outlined below, two will be funded through these joint studentships.

PhD Research Topics

  1. Integrated legal advice and health services

Supervised by Prof Rosalind Raine (NIHR CLAHRC North Thames, NIHR SPHR, UCL), Prof Dame Hazel Genn (UCL Centre for Access to Justice) and Dr Charlotte Woodhead (NIHR CLAHRC North Thames, NIHR SPHR, UCL)

  1. Exploring the value of linked health and council data to examine associations between adverse childhood experiences and its consequences using linked population and health datasets

Supervisory panel includes Dr Jessica Sheringham (NIHR CLAHRC North Thames, UCL), Dr Manuel Gomes (UCL) and Dr Sarah Dougan (London Borough of Islington)

  1. Exploring the value of linked health and council data to examine the clustering of multimorbidity and associated unplanned service use

Supervisory panel includes Dr Jessica Sheringham (NIHR CLAHRC North Thames, UCL), Dr Manuel Gomes (UCL) and Dr Sarah Dougan (London Borough of Islington)

  1. Closing the gap in adverse physical health outcomes for people with poor mental health: exploring the role of healthcare provision and care pathways

Supervised by Dr Kate Walters (NIHR SPHR, UCL) and Prof David Osborn (NIHR SPHR, UCL)

Further details of all topics and methodological expertise or experience required can be found here: PhD Studentships – CLAHRC SPHR Full Description 2018 

Eligibility

Candidates should hold a Master’s qualification (or complete their Master’s by September 2018) in an appropriate discipline and have a minimum of a 2:1 or equivalent in their first degree. Applicants should preferably have knowledge of the UK health and care system. All applicants are required to have excellent written and verbal communication skills. They should also be willing to work collaboratively in multi-disciplinary and multi-professional teams.

Due to funding restrictions applicants must be UK/EU nationals. Please refer to UK Council for International Student Affairs (UKCISA) for details of these criteria.

How to apply

Your application should consist of a CV, contact details of two academic referees, and a personal statement (1,000 words maximum) describing your suitability for the proposed project(s) including how your research experience, skills and interests relate to the NIHR CLAHRC North Thames and NIHR SPHR project(s). In your application, please indicate which project(s) you wish to be considered for.

Please send your application or queries about projects to Dr Silvie Cooper, NIHR CLAHRC North Thames Academy Teaching Fellow (silvie.cooper@ucl.ac.uk).

Closing date for applications: 17.00, 15 May 2018

Interviews: 25 May 2018

PhD start date: 01 September 2018 (or earlier if desired)

Duration: 3 years, full time

Stipend:  £19,158

 

Results of Brian Turley Patient and Carer Involvement Awards announced

The votes are cast and the results are in the winners of the inaugural London wide Brian Turley Patient and Carer Involvement Awards have been selected!

The Awards were created in memory of Brian Turley (pictured below) , a dedicated and committed patient advocate and disability rights campaigner who worked closely with our colleagues at NIHR CLAHRC North West London. The awards aim to sustain Brian’s values and commitment to partnerships between professionals and patients, carers and the public in research and service improvement work across the Capital.

All candidates have been informed of the results.

Winners will be officially announced on April 26th at the NIHR CLAHRC NWL Spring Learning Event at the Congress Centre in Central London.

We look forward to the presentation of the Awards by Simon Denegri, National Director for Patients and Public in Health Research.

 

Visit http://clahrc-northwestlondon.nihr.ac.uk/ to register for this free event.

Our thanks to researchers, NHS and Public Health staff and of course patients, carers and users of services who took the time to put together nominations and entries,

We also recognise the work of judges from each CLAHRC who took the time to consider each award carefully, and provide detailed and constructive feedback for entrants.

 

CLAHRC Director Prof Rosalind Raine starts work with Joint Lancet/LSE Commision on the future of the NHS

The future of the NHS is a massive issue and always at the top of the public agenda.

While the Service is the topic of fierce debate at election times, and is often used as a political football to criticise or discredit opponents, the need for a longer-term more considered view is vital to help ensure public debate is better-informed.

In this spirit the Lancet has launched a new joint Commision with the London School of Economics and Political Science on the future of the NHS. The Commission will examine how well placed the NHS is to deliver high-quality care free at the point of need in light of the massive demographic and political changes that have occured since its launch in 1948.

CLAHRC North Thames Director Professor Rosalind Raine (below) is one of the prominent thinkers recruited to be part of the Commision.

The Service’s 70th anniversary provides a timely opportunity to review how much the NHS can still fulfil its aspiration, set out in the 1942 Beveridge Report  to be “a national health service for prevention and for cure of disease and disability” that “will ensure that for every citizen there is available whatever medical treatment he requires, in whatever form he requires”.

Over the next 18-month period, Professor Raine will join commissioners from a wide range of disciplines across England, Scotland, Wales and Northern Ireland to focus on the pertinent challenges facing the NHS, culminating in the release of a report containing a series of policy recommendations in 2019.

External organisations can submit written evidence  to the Commission on their perspectives regarding the biggest challenges facing the NHS.

An opinion piece in the Lancet marks the start of the Commission’s work.

The future of the NHS: no longer the envy of the world?

Mossialos, Elias et al.

The Lancet , Volume 391 , Issue 10125 , 1001 – 1003

DOI: https://doi.org/10.1016/S0140-6736(18)30574-9

Improving NHS orthopedic care – your views and experience needed

There are big variations in care for people receiving orthopedic services in the NHS –  orthopedics covers conditions involving the musculoskeletal system including hip and knee replacement surgery. We are evaluating the Getting it Right First Time programme – or GIRFT – which aims to improve services and make sure people get more consistent care across the whole NHS.

Part of our evaluation involves asking two sets of people –

i) patients over 60 who have had orthopaedic surgery in the last two years
and
ii) people over 60 

about their views on orthopaedic surgery and improving outcomes.

We’re running focus groups in April and May at the UCL Farr Institute

UCL Farr Institute, 222 Euston Road, London, NW1 2DA

i) People who have had a hip or knee replacement in a NHS hospital within the last two years Aged over 60

ii) People over 60

Contacts to register your interest are below –

Dr Jean Ledger: j.ledger@ucl.ac.uk or 020 7679 2000 / x53274
Dr Sarah Jasim: sarah.jasim@ucl.ac.uk or 020 7679 2000 / x53233

Introduction to Evaluation Online: 16 April – 13 May 2018

Do you need to demonstrate the impact of projects in your organisation?

Do you want to improve the design and implementation of your programmes?

Are you tasked with carrying out an evaluation, but don’t know where to start?

Consider enrolling in our four-week online course run by the NIHR CLAHRC North Thames Academy to address these challenges. It is aimed at staff in frontline services at NHS Trusts, CCGs and Local Authorities, who have limited experience conducting service evaluations.

After participating in this course, you will have the skills and knowledge to undertake your own evaluation of a local programme or service. Inspired by the content of our popular face-to-face evaluation course, the online course will cover:

  • Different types of evaluation, including their pros and cons

  • How to select suitable methods and approaches for evaluating a local programme or service

  • Practical skills and tips in using evaluation methods and approaches

  • Ways of sharing your evaluation findings to make an impact

Teaching will be delivered entirely online, by expert tutors. You’ll learn by watching videocasts; interacting through activities and questions; and learning from others by taking part in the discussions that accompany each step. You’ll also develop a plan for a real life evaluation you may have to conduct.

 

Who is this workshop suitable for?

Staff from NHS trusts, local authorities and clinical commissioning groups who need to evaluate local programmes or services as part of their work. The course is not aimed at academics or researchers.

 

What preparation is needed?

Participants should attend the course with an evaluation in mind that they may have to carry out.  No previous knowledge of evaluation is required, or experience of study design and statistics.

Participants will receive a certificate of completion if they undertake at least 80% of the course activities.

 

Dates – Monday 16 April – Sunday 13 May 2018.

Learning hours 3 hours per week (12 hours in total)

Cost – £100 for staff working in NIHR CLAHRC North Thames partner organisations (please click here to see a list of our partners). There is a delegate fee of £250 for other attendees.

Registration – Registration will open in February 2018, when an application form will be available here. Applications will be selected to ensure a diverse range of participants.  The closing date is Friday 30th March, 5pm.

Please note, a cancellation fee of £100 will be charged to both partner and non-partner delegates in the event of non-attendance without notice after 5pm, Sunday 8th April 2018.

 

For more information, and to be added to our mailing list, please contact clahrc.academy@ucl.ac.uk

New research – Improving the response to domestic violence and abuse in sexual health clinics

The findings of the joint CLAHRC West and CLAHRC North Thames study of the IRIS ADViSE pilot, which aimed to improve sexual health professionals’ response to women who have experienced domestic violence, are now available as a CLAHRC BITE.

Women who have experienced domestic violence and abuse (DVA) are three times more likely to have gynaecological and sexual health problems such as sexually transmitted infections, urinary tract infections and unintended pregnancy. Forty-seven per cent of women attending sexual health services will have experienced DVA at some point in their lives.

These services can be the first point of contact for women who have experienced DVA, so sexual health practitioners can have a key role in supporting women to access advocacy services. But most sexual health professionals haven’t had much training in identifying and responding to DVA, despite National Institute for Health and Care Excellence (NICE) recommendations.

The IRIS (Identification and Referral to Improve Safety) programme is an evidence-based training intervention for general practice staff to identify, respond and appropriately refer women who are affected by DVA. It is being implemented in general practice nationwide. IRIS ADViSE (Assessing for Domestic Violence in Sexual Health Environments) adapts the IRIS approach for sexual health staff.

This project looked at the feasibility and acceptability of the IRIS ADViSE pilot in sexual health clinics in Bristol and East London. The pilot aimed to encourage sexual health staff to ask patients whether they were experiencing DVA, and to make referrals to specialist services.

IRIS ADViSE included all staff training, patient information materials, an enquiry prompt in the electronic patient record and a simple referral pathway to DVA advocacy services.

In the east London clinic over seven weeks:

  • 267 out of 2,568 women attending were asked about DVA
  • 16 of those (6 per cent) said that they were affected by abuse
  • Overall, eight of the women affected by abuse (50 per cent) were referred to specialist services

In the Bristol clinic over 12 weeks:

  • 1,090 out of 1,775 women attending were asked about DVA
  • 79 of those (7 per cent) said they were affected by abuse
  • Overall, eight of the women affected by abuse (10 per cent), were referred to specialist services

During the three months before the pilot started, there were no referrals to DVA specialist services at either site.

We also interviewed sexual health clinic staff and DVA advocate workers in Bristol.

All the people we interviewed felt that asking about and referring women on to DVA services was appropriate and valuable in a sexual health setting. They responded favourably to the training and felt more confident about asking about DVA and managing disclosures.

Staff said that patients’ welcomed being asked about it, even if they’ve not ever been involved in an incident of domestic abuse themselves, that they appreciate that people are asking that question.

The staff reported that some disclosures were considered relatively simple and easy to handle, where patients can be easily referred to the partner DVA organisation or given information.

However, cases with an immediate risk of harm to the patient or their children were more complex in terms of managing the patient’s wishes and navigating existing safeguarding procedures. This added to staff’s already limited time and busy workloads.

Dr Jeremy Horwood (pictured below), lead researcher from the Centre for Academic Primary Care at University of Bristol and NIHR CLAHRC West, said:

“Sexual health staff are definitely supportive of asking their patients about domestic violence and abuse. But it’s crucial that they have support to do so, as these patients must be dealt with sensitively and referred on appropriately.

“At the policy and commissioning level, stronger recognition of the issues around domestic violence and abuse referrals, and resources to support them, are needed. Commissioners and local NHS trusts need to engage and commit to support domestic violence and abuse training, and to support programmes such as IRIS ADViSE.”

The study shows that it is feasible and acceptable to develop and implement the IRIS ADViSE training and referral package for sexual health clinics. At the policy and commissioning level, stronger recognition of the issues around DVA referrals, and more resources to support them, are needed. Commissioners and local NHS trusts need to engage and commit to financially support IRIS ADViSE to maximise its potential.

This study is part of CLAHRC North Thames’ wider collaboration with our colleagues at CLAHRC West.  Researchers and staff work across London and Bristol sites each bringing their own expertise and experience to produce high-quality research.  Our teams regularly meet to coordinate their work, and develop bids for funding for future work.

For this IRIS ADViSE project CLAHRC North Thames led on the work at the initial pilot site, focusing on the quantitative analysis; whereas CLAHRC West led on the qualitative analysis.

Links and downloads

BMJ talk medicine
Domestic violence affects a quarter of UK women: the role of sexual health practitioners
Listen to a podcast hosted by Editor in Chief of Sexually Transmitted Infections Jackie Cassell who is joined by Neha Pathak (Wellcome Trust Clinical PhD Fellow, Institute for Epidemiology & Healthcare, University College London) and Gene Feder (University of Bristol, Centre for Academic Primary Care) to discuss the various forms of the abuse and how healthcare practitioners can intervene.

 

Read our CLAHRC BITE summarising the research
Improving the response to domestic violence in sexual health clinics

Read the full research papers –

Sohal AH, Pathak N, Blake S, Apea, V. Berry, J. Bailey, J. Griffiths, C. Feder, G. (2018)
Improving the healthcare response to domestic violence and abuse in sexual health clinics: feasibility study of a training, support and referral intervention
SexuallyTransmitted Infections doi: 10.1136/sextrans-2016-052866

Horwood J, Morden A, Bailey JE, Pathak, N and Feder, G. (2018)
Assessing for domestic violence in sexual health environments: a qualitative study
Sexually Transmitted Infections. doi: 10.1136/sextrans-2017-053322

Pathak N, Sohal AH, Feder G.(2017)
How to enquire and respond to domestic violence and abuse in sexual health clinics.
Sexually Transmitted Infections. 2017 May;93(3):175-178. doi: 10.1136/sextrans-2015-052408. Epub 2016 Jul 25.