Patient Research Ambassadors needed to promote health research from a patient point of view
We have teamed up with colleagues at the NIHR Clinical Research Network (CRN) to support their Patient Research Ambassador (PRA) initiative.
The Network is looking for patients, carers, and members of the public who have taken part in research and who are passionate about it.
The Ambassadors will help improve how local people across the North Thames patch find out about and participate in clinical research and also help to increase awareness of the importance of supporting clinical research. The PRAs will play their part in ensuring research is patient and public focussed.
Examples of the type of work PRAs do are below –
Full training and support will be available. As well as a chance to learn new skills and improve how research is planned and carried out in your area you will be part of a network of PRAs.
To find out more contact CRN North Thames patient and public involvement manager Christine Menzies by emailing email@example.com or calling 0207 679 9763
CLAHRC researcher Professor Jonathan Grigg is among leading doctors, public health professionals and organizations launching a new global advocacy group to mobilize clinicians and public health professionals to advocate for clean air policies.
Professor of Paediatric Respiratory and Environmental Medicine at Queen Mary University of London, Jonathan (below) is a leading UK paediatrician in the effects of air pollution. He is a founder member of the new interbational coalition, following his involvement in the UK based Doctors against Dieselinitiative.
According to the new group nine in ten people breathe polluted air, making it the world’s leading environmental cause of death and disease. Inspire aims to bring air pollution to the forefront of health and climate agendas.
It will offer a framework to push governments to address the root causes of air pollution and advocate for clean air policies and it aligns WHO’s road map for global action, including:
Improve awareness in the global health community about air pollution and its health effects
Increase involvement of clinicians and clinical organizations in advocacy for clean air policies
Establish a global network of informed health-oriented champions
Grow public awareness of the dangers of air pollution
Exert political pressure on governments to encourage aggressive clean air policies
A major new paper in the Lancet highlights rates of premature mortality that are two times higher in the most deprived areas of England (Blackpool) compared to most affluent (Wokingham).
Dr Harry Rutter, Clinical Research Fellow at the London School of Hygiene and Tropical Medicine was among the prominent experts in the field who authored the paper.
Dr Rutter, a public health physician, was Principal Investigator of the CLAHRC’s evaluation of the Greater London Authority’s Healthy Schools London programme.
The work presents findings from a new Global Burden of Disease (GBD) Study funded by the Bill & Melinda Gates Foundation and Public Health England.
The Global Burden of Disease includes evidence collected and analyzed by a consortium of more than 3,000 researchers in more than 130 countries and provides a tool for goverments and policy makers to measure health loss from hundreds of diseases, injuries, and risk factors, so that health systems can be improved and inequalties tackled
The authors of the Lancet paper used the data to estimate years of life lost (YLLs), years lived with disability (YLDs), disability-adjusted life-years (DALYs), and attributable risks from 1990 to 2016 for England, Scotland, Wales, Northern Ireland, the UK, and 150 English Upper-Tier Local Authorities. They estimated the burden of disease by cause of death, condition, year, and sex.
You can view via an interactive ‘Lost Years’ map – which reveals the extent of health inequality across the UK.
Changes in health in the countries of the UK and 150 English Local Authority areas 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016 Nicholas Steel, John A Ford, John N Newton, Adrian C J Davis, Theo Vos, Mohsen Naghavi, Scott Glenn, Andrew Hughes, Alice M Dalton, Diane Stockton, Ciaran Humphreys, Mary Dallat, Jürgen Schmidt, Julian Flowers, Sebastian Fox, Ibrahim Abubakar, Robert W Aldridge,Allan Baker, Carol Brayne, Traolach Brugha, Simon Capewell, Josip Car, Cyrus Cooper, Majid Ezzati, Justine Fitzpatrick, Felix Greaves, Roderick Hay, Simon Hay, Frank Kee, Heidi J Larson, Ronan A Lyons, Azeem Majeed, Martin McKee, Salman Rawaf, Harry Rutter, Sonia Saxena, Aziz Sheikh, Liam Smeeth, Russell M Viner, Stein Emil Vollset, Hywel C Williams, Charles Wolfe, Anthony Woolf, Christopher J L Murray
Black elders dismiss the warning signs of dementia until the condition becomes too severe to ignore or a crisis strikes. They are also less likely to receive a diagnosis of their condition, resulting in delayed treatment and less time to plan for the future.
Our latest BITE – a summary of published CLAHRC research provides an overview of our work with black elders, their families and carers to;
identify barriers and facilitators to seeking help for dementia.
based on what we found, work with dementia patients and their carers, volunteers from the public, clinicians and experts in the treatment and research of dementia to develop an intervention – a leaflet entitled Getting help for forgetfulness (below)
trial the intervention with GP registered patients, who were asked to rate it and evaluate its effect on their intention to seek help from their doctor.
The concept of knowledge co-production is used in health services research to describe partnerships (which can involve researchers, practitioners, managers, commissioners or service users) with the purpose of creating, sharing and negotiating different knowledge types used to make improvements in health services.
The CLAHRC has researchers “embedded” in a number of our partner organisations in the NHS and local government. The “researcher in residence” model has the advantage of allowing academics to be close to the ground and gain insight into how an organisation really operates. It also presents challenges in creating and maintaining key relationships and professional independence.
In a newly published BITE-sized summary of our research we present the results of our examination of three case studies and the wider implications for this model of working.
One to one nursing, or specialling is a way of caring for patients by providing continuous observation (by “sitters”) for an individual for a period of time during acute physical or mental illness.
Some patients need more than a general level of observation on a ward, often with the primary aim of reducing risk and protecting the patient.
Our review, published in a BITE, examined published evidence on the topic of specialling and sitters, aiming to identify the challenges and concerns relating to the cost effectiveness and quality of care.
Preventer inhalers (inhaled corticosteroids) are a common medication for asthma, and people get the full benefit of the medication by taking their prescribed doses correctly. We know many patients struggle to take enough doses effectvely, which impacts their ability to manage the condition.
Could pharmacists hold the key to helping patients take medicines effectively and in the right doses?
Our latest BITE – a postcard “need to know” summary of our research – presents the findings of our review of the evidence on whether pharmacists involved in asthma care could help people take their preventer inhaler as prescribed, therefore giving them the full benefit of their medication.
New knowledge generated by our research impacts commissioning and funding decisions on welfare advice
Our work to investigate the impact of locating welfare advisers in GP surgeries is bearing fruit as the new knowledge and evidence we have generated is influencing commissioning decisions for these services across London and beyond.
We know that a significant amount of General Practitioners workload is generated by patients approaching them with non-clinical issues such as debt, housing and immigration.
While these concerns undoubtedly impact health and wellbeing, doctors are not necessarily the best professionals to assist. Haringey Council trialled a scheme to locate welfare advice, and welfare advisers in GP surgeries to deal with these issues.
We evaluated the impact of this advice (provided by Citizen’s Advice Bureau staff) on both GP workloads and on the health, wellbeing and use of services by the patients affected.
Our evidence has been used to support the following decisions –
Haringey: our evidence was used to support retention of all except one primary care co-located welfare advice service in and to provide an additional more intensive service at a mental health hospital (St Ann’s Hospital);
Camden: although the CCG decided to cease funding for GP outreach two GP practices have used the study findings to support ongoing funding for services at their practices (including an application for Big Lottery funding)
Deryshire; Citizens Advice services in Derbyshire have requested study findings to support a business case for ongoing funding of GP outreach in the region
Sussex: our study has been used as a basis to develop an evaluation framework in Sussex
CLAHRC researchers enjoyed success at the recent Public Health England Annual Conference in Warwick.
They were among the authors of an award winning poster representing our partnership work with Islington Council.
We are working with the borough as it seeks to link NHS data with its own datasets to build a clearer picture of local population needs and better target services and interventions.
Linking these sources of data can build a picture of how social determinants of health – the conditions in which people are born, grow, live, work and age – might impact on residents’ wellbeing and use of health services. Examples would include how housing conditions impact on hospital admissions or how serious childhood illnesses could affect school attendance and attainment.
The poster was presented by Laura Scott, Principal Data Specialist at Islington Council and highlights how 90 data sources within the council are being joined up, already proving valuable in understanding local risk factors for ill health and improving access to services.
Islington insights population register: linking council data to understand local population needs for a fairer, healthier society
Laura Scott, Helen McDonald, Mahnaz Shaukat, Lawrence Vandervoort, Logan Robertson, Jessica Sheringham, Sarah Dougan
Over 1500 participants visited the PHE annual conference representing a wide range of organisations working to improve the health of the public.
The CLAHRC’s Dr Jessica Sheringham (Senior Research Associate) was an author of the poster chosen from over 350 submitted – the award was presented at the conference dinner.