Media coverage of the use of statins to prevent cardiovascular disease, of Tamiflu to treat flu and of the HPV vaccine to prevent cervical cancer have opened up public debate about medical and scientific claims.
CLAHRC researcher and leader of our behaviour change theme Professor Rob Horne (pictured below) has helped produce new resources for professionals and patients to improve the way evidence about medicines is communicated.
Professor Horne is part of a prestigious Oversight Group within the Academy of Medical Sciences looking at how scientific evidence around medicines can best be communicated and understood.
Their report entitled Enhancing the use of scientific evidence to judge the potential benefits and harms of medicines aims to address problems that can arise from poor-quality evidence about medicines, or misrepresentation or misperception of evidence.
The report and associated resources will help health professionals to improve the use of scientific evidence to judge the potential benefits and harms of medicines. This will lead to better, more informed conversations between professional and patient about the benefits and risks of prescribing (or not prescribing) a particular medicine.
Other resources produced as part of this work include a pocket guide for patients entitled Helping you decide whether to take a medicine
Training clinicians to proactively ask patients about domestic violence and abuse (DVA) is feasible for sexual health clinics to implement and could increase referrals to specialist services, according to a joint CLAHRC North Thames/CLAHRC West study led by researchers at Queen Mary University of London (QMUL) and the University of Bristol involving over 4,300 women.
The risk of gynaecological and sexual health problems (including sexually transmitted infections, painful sex, vaginal bleeding and recurrent urinary tract infections) is three-fold higher in women who have suffered DVA. Meanwhile, 47 per cent of women attending sexual health services will have experienced DVA at some point in their lives.
Sexual health services can be the first point of contact for women who have experienced DVA, and were listed by the National Institute for Health and Care Excellence (NICE) as a setting in which all patients should be asked about DVA. However, most sexual health professionals have had minimal training in identifying and responding to DVA.
The study looked at the feasibility of sexual health clinics adopting a programme called IRIS (Identification and Referral to Improve Safety) – a DVA training and referral programme endorsed by NICE, the Royal College of GPs and Department of Health, originally aimed at encouraging GPs to ask patients whether they are experiencing DVA and to make referrals to specialist domestic violence services.
The team tested the intervention in two female walk-in sexual health services; an east London clinic serving an inner-city multi-ethnic population, and a Bristol clinic serving an urban population.
In the east London clinic over seven weeks, 267 out of 2,568 women attending were asked about DVA, with 16 of those (6 per cent) saying that they were affected by abuse. Overall, eight of the women affected by abuse (50 per cent) were referred to specialist services.
In the Bristol clinic over twelve weeks, 1,090 out of 1,775 women attending were asked about DVA, with 79 of those (7 per cent) saying they were affected by abuse. Overall, eight of the women affected by abuse (10 per cent), were referred to the specialist services.
Lead CLAHRC North Thames researcher Dr Alex Sohal (pictured left) said:
“Women attend sexual health clinics for care of their sexual health but little thought is given to whether the relationship with the person that a woman has sex with directly harms her health. Without training, system level changes and senior managerial support, clinicians end up ignoring DVA in consultations or have an arbitrary approach that fails many women affected by DVA.
Not only is this a feasible intervention for a sexual health clinic setting, but we also found that clinical leads and busy local DVA service providers were incredibly supportive, with many people understanding the importance of making this work.”
Read the full paper:
Improving the healthcare response to domestic violence and abuse in sexual health clinics: feasibility study of a training, support and referral intervention
Sohal AH, Pathak N, Blake S, et al. Sex Transm Infect Published Online First: doi:10.1136/ sextrans-2016-052866
The NHS generates huge amounts of data but using it to track patient flow and pathways of care requires sophisticated mathematical modelling. CLAHRC PhD student, Ryan Palmer, is “embedded” within one of our partner organisations – North East London Foundation Trust (NELFT) – where part of his work involves offering support and guidance to managers and staff interested in getting the most out of the data they routinely collect.
An example of Ryan’s visualisation of referral patterns between hospital and community services in a busy NHS Trust.
Ryan ran a successful workshop hosted by our research partners NELFT training healthcare professionals how to use network mapping methods for understanding referral data in community healthcare. Care leads who attended came from a range of healthcare disciplines and services, including paediatrics, adult physical health, mental health services and social care.
The two-hour session involved: how to prepare data, how to create network diagrams and the beginnings of discussions as to how these methods may be used to inform service planning. Interest was generated during the session, with many realising the benefits of these methods.
Visualising referral data helps researchers and care managers to work together and understand otherwise overwhelming and hard to interpret data for complex systems. These network maps highlight important characteristics of referral activity and can help identify services that exhibit interesting dynamics. Sharing this work with healthcare professionals, they helped to stimulate further conversations around the analysis and organisation of referrals in community healthcare services.
Our collaborators are currently seeking to implement a single point access (SPA) for older adult community services. This session formed part of the ongoing work with our collaborators to help inform their thinking in designing this SPA.
Research Assistant Moïse Roche enjoyed success at the recent prestigious Health Services Research UK conference in Nottingham.
A poster outlining Moise’s work, as part of our Improving care of people with memory problems in Black African and Caribbean groups study won the People’s Poster Prize at the event – as voted by attendees.
Congratulations to Moïse!
The National Institute for Health Research are asking for comments and ideas on some draft standards for involving people in research.
Help us improve draft national standards for public involvement in research
Invitation to review and improve draft national standards for public involvement in research
Consultation: draft national standards for public involvement in research
During 2016/17, Health and Care Research Wales, the National Institute for Health Research (NIHR), the Chief Scientist Office in Scotland and the Public Health Agency in Northern Ireland have been working with public contributors as the ‘Public Involvement Standards Development Partnership’. The Partnership is developing a set of national, core standards and indicators for public involvement (PI) in research that can be used by organisations, research projects and individuals to improve the quality and consistency of PI.
Here is a summary of the steps we have taken so far and our plans for future work.
As you can see, we would now like to involve you in reviewing and giving us feedback on the draft standards and indicators. Do they capture what good public involvement in research looks like from your perspective? Will they be of practical use to you? What have we missed out? How can we improve them?
The consultation is running from 29th June 2017 to 1st September 2017. Please visit the project website for more detailed information about the consultation process and to access all the resources you might need:
If you have any questions or queries about the consultation please contact the PPI team at the NIHR Central Commissioning Facility:
Email: firstname.lastname@example.org Telephone: 020 8843 8041
July 4th saw more than 100 policymakers, clinicians, researchers, representatives from charities, and patients and service users gathered at the House of Lords to celebrate the important applied health research being undertaken across London.
All of the research showcased at the event took place within the three NIHR Collaborations for Leadership in Applied Health Research and Care in London – CLAHRCs South London, North Thames and Northwest London, with the event led by CLAHRC South London.
After a welcome from Lord Nigel Crisp, former chief executive of the NHS, there were some opening remarks. Nick Moberly, chief executive at King’s College Hospital and co-chair of the CLAHRC South London Board, outlined the unique strengths of the CLAHRC partnership model.
Professor Jo Martin (below) from CLAHRC North Thames, an honorary consultant at Barts Health NHS Trust and professor of pathology at Queen Mary University of London, spoke about the depth of applied health research expertise in London, and its impact on health services across the country.
Finally, Sandra Jayacodi, a patient team member in northwest London, spoke about the life-changing impact of being involved in a project to improve the physical health of people with serious mental illness.
Guests were then invited to find out more about CLAHRC research at four themed areas – mental and physical wellbeing, improving health and wellbeing through primary care, tackling the capital’s health challenges, and building research capacity and education.
CLAHRC North Thames projects represented reflected the scope of our research work – Dr Charlotte Woodhead showcased our research evaluating the impact of locating welfare advice in GP surgeries on patients’ health and demand for NHS services; Professor Chris Griffiths explained how the Identification and Referral to Improve Safety (IRIS) programme is improving the response to domestic violence and abuse by NHS services; and Professor Jonathan Grigg presented our work to reducing asthma admissions using a school-based intervention
Our Academy Lead Professor Naomi Fulop outlined our capacity building activities alongside Academy lecturer Dr Victoria Newton.
Professor Rosalind Raine, director of CLAHRC North Thames, said: ‘The event was a brilliant example of collaboration between the CLAHRCs. We’ve had lots of positive feedback from attendees, and there is a real sense of support for creating the long-term infrastructure to ensure that applied health research can meet the significant health challenges of the future.’
Palliative care for children and young people with life-limiting conditions and life-threatening illnesses is a relatively new discipline, and one where current practice in services has developed beyond the evidence base available. Barriers to conducting research in this area are numerous, and span the entire length of the research process.
CLAHRC researchers from the BRAVES project, based at the Louis Dundas Centre, are working to identify these barriers to recruiting children with life-limiting conditions to research, and to develop solutions.
“Establishing robust evidence is going to require concerted effort on everyone’s part: clinicians, parents, patients, and researchers.”
Professor Myra Bluebond-Langner, principal investigator on the BRAVES project, has recently recorded a podcast with the journal Palliative Medicine, discussing the need for an increased understanding of barriers to research in paediatric palliative care, findings from the project so far, and outlining the future research planned by the team.
Initial findings from the study, and previous work at the Louis Dundas Centre, have suggested that fundamental barriers exist at both the individual level, e.g. clinicians’ attitudes to involving young people in research, as well as at the institutional level, e.g. ethics committees and resource constraints, even though children and young people want to participate in research.
“So, why, if we no longer accept paternalism in clinical practice, are we willing to accept it, indeed demur to it, in research practice?
The overall goal of the BRAVES project is to develop guidance based on the experience of all stakeholders, which in turn will help to develop the evidence base in the field of paediatric palliative care.
Based on the findings outlined in the podcast, the research team has since conducted a study investigating the experiences and difficulties of chief investigators recruiting children and young people with life-limiting conditions and life-threatening illnesses to research. The findings from this study are expected to be published soon. The next step for the CLAHRC researchers is to analyse data collected from a nationwide research groups’ applications to Research Ethics Committees, and to interview members of these committees to develop further insights.